Inspiring Stories

As 6-year-old Cameron Mott sings and dances her way around her family's North Carolina living room, it's obvious she has some serious star power. But things weren't always this way. At age three she started having seizures and was diagnosed with cortical dysplasia, an abnormality in the development of the cerebral cortex.

"She was having six to 10 seizures a day," says her dad, Casey. The seizures robbed Cameron's family of their little girl. Every morning she was clear and bright,...

Bringing It All HomeHaving a child with special needs often makes parents feel as though they are spending their lives driving from one specialist to another, trapped in waiting rooms, and filling out forms. It was no different for John and Amy Thompson. Their son Jake was diagnosed with Rasmussen's syndrome, a brain disorder that causes...

When Jeffery and Rebekah Fish found out that they were going to have a baby, they were understandably thrilled.

"Even before she was born, we sang to the baby," says Jeffery. "We named her ahead of time." They had big dreams for Laura, but they also wanted that most basic of things: a happy, healthy baby girl. That was not to be.

Because of complications with the pregnancy, doctors were forced to leap into action and induce labor early. Then they immediately sent Laura to a...

Primeros PasosBuenos días. Gracias por llamar al Kennedy Krieger Institute. ¿Cómo le puedo ayudar?

If the line of text above is confusing, imagine living in a world where every word, every conversation is a mystery. Imagine needing services but not being able to access them because you don't speak the language.

For many Spanish-...

Making the GradeBryan's teachers were at a loss for how to help him when he hid under his desk or back in the cubby area and cried. They knew he had been diagnosed with attention-deficit hyperactivity disorder; dysgraphia, a learning disability that affects writing abilities; and Asperger syndrome, but they didn't know...

Erin Blitz with Dr. Stewart MostofskyLaurie Blitz began to suspect that something was not quite right with her daughter as early as when she was a toddler. Erin seemed overly hyperactive, moving so much that even simple tasks like changing her diaper became lessons in patience and control. When she was old enough to walk, she would...

Erin StrevigOnce a week, 19-year-old Erin Strevig can be found riding horses near her home in Westminster. Born with a rare genetic condition known as Williams syndrome, she has difficulty doing many of the things that typically developing teenagers can do with ease, such as walking and talking. But in horseback riding, Erin has found her passion and...

Sam SpringLast year, 5-year-old Samuel Spring came to Kennedy Krieger Institute for evaluation of autism. The genetic and metabolic tests he was to undergo required giving a blood sample. When the nurse tried to tie the tourniquet around his arm in preparation for the needle stick, Sam began to cry and break away. His behavior made...

Davona MillerJim Schuyler had a big decision to make last February. Diane Stegman, one of the Program Coordinators for the Therapeutic Family Care program, wanted to know whether he and his wife, Karen, could manage to care for one more child. That day, caseworkers from the Department of Social Services had removed Dante,* a 2-year-old boy with...

Nicole BahenIf you've ever doubted how quickly your life can be turned upside down, just ask the Bahen family. On Monday, Nov. 14, 2000, the Bahens' 5-year-old daughter Nicole joined her friends for her usual afternoon dance class. By Sunday Nov. 20, Nicole lay in intensive care recovering from surgery, unable to speak, roll over or swallow, nearly...