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Eric B. Levey, M.D.
Kennedy Krieger Institute
707 N. Broadway
Baltimore, MD 21205
Phone: (443) 923-2740
Dr. Levey is a researcher and pediatrician specializing in the medical care of children with severe developmental disabilities. Currently, he serves as the medical director for both the Pediatric Feeding Disorders Continuum and PACT: Helping Children with Special Needs. He also serves as the associate medical director for the Carter Center for Brain Research in Holoprosencephaly and Related Malformations. He is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. He is also a provider in the Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine.
Dr. Levey completed his undergraduate studies at the University of Pennsylvania, majoring in economics and natural science. He graduated in 1989 and then remained at Penn for medical school, graduating in 1993. He did his residency in pediatrics at the Johns Hopkins Hospital from 1993 until 1996. After his residency, he completed a fellowship in general academic pediatrics through the Johns Hopkins University School of Medicine.
Since completing the fellowship in 1999, he has been working at the Kennedy Krieger Institute in its spina bifida and cerebral palsy programs. He is the former director of the Philip A. Keelty Center for Spina Bifida & Related Conditions. Current positions at Kennedy Krieger Institute include:
- Medical Director, Pediatric Feeding Disorders Continuum
- Medical Director, PACT: Helping Children with Special Needs
- Associate Medical Director, Carter Center for Brain Research in Holoprosencephaly and Related Malformations
He is a member of the professional advisory committee of Johns Hopkins Pediatrics at Home and on the board of the Maryland Coalition for Inclusive Education. He was previously on the advisory boards of the Wald Community Nursing Center of the Johns Hopkins University School of Nursing and the Maryland Respite Care Coalition. He is a former chair of the Committee on Disabilities/CSHCN of the Maryland Chapter of the American Academy of Pediatrics (AAP), as well as a former member of the national AAP Committee on Children with Disabilities. He is immediate past president of the Maryland Chapter, AAP.
Dr. Levey is a member of the American Academy of Pediatrics, Academic Pediatric Association, Society for Research in Hydrocephalus and Spina Bifida, and the American Academy for Cerebral Palsy and Developmental Medicine.
Dr. Levey also has an interest in health policy and developing systems of care for children with special health care needs.
During his fellowship, Dr. Levey examined the use of pediatric home health care services in the state of Maryland using Medicaid claims data.
Dr. Levey was part of a team of Kennedy Krieger professionals who participated in a Center of Excellence Grant project from the Maryland Department of Health and Mental Hygiene. One component of the project was to develop recommendations for improving communication and coordination between health care, educational and community providers. Another component of the project was to develop guidelines for the care of individuals with spina bifida and cerebral palsy. He subsequently worked on a project to develop and refine recommendations for the role of the health care provider in the transition of adolescents with disabilities to adulthood.
As part of the Carter Center for Brain Research in Holoprosencephaly and Related Malformations, Dr. Levey is working with a group of scientists to study the epidemiology, clinical features, and neuroimaging characteristics of children with HPE. They are also using diffusion tensor imaging (DTI) to study the brains of children with cerebral palsy.
Dr. Levey has a number of research publications focused on cerebral palsy, spina bifida, and holoprosencephaly.
Since 2010, he has been the medical director of the Pediatric Feeding Disorders Program at Kennedy Krieger Institute and is now exploring research opportunities in this area.
Jacobson LA, Tarazi RA, McCurdy MD, Schultz S, Levey E, Mahone EM, Zabel TA. (2013). The Kennedy Krieger Independence Scales-Spina Bifida Version: a measure of executive components of self-management. Rehabilitation Psychology, 58(1), 98-105.
Zabel TA, Jacobson LA, Zachik C, Levey E, Kinsman S, Mahone EM. (2011). Parent- and self-ratings of executive functions in adolescents and young adults with spina bifida. The Clinical Neuropsychologist, 25(6), 926-941.
Bellin MH, Dicianno BE, Levey E, Dosa N, Roux G, Marben K, Zabel TA. (2011). Interrelationships of sex, level of lesion, and transition outcomes among young adults with myelomeningocele. Developmental Medicine and Child Neurology, 53(7), 647-652.
Monitto CL, Hamilton RG, Levey E, Jedlicka AE, Dziedzic A, Gearhart JP, Boyadjiev SA, Brown RH. (2010). Genetic predisposition to natural rubber latex allergy differs between health care workers and high-risk patients. Anasthesia & Analgesia, 110(5), 1310-1317.
Levey EB, Stashinko E, Clegg NJ, Delgado MR. (2010). Management of children with holoprosencephaly. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 154(C), 183-190.
Bellin MH, Zabel TA, Dicianno BE, Levey E, Garver K, Linroth R, Braun P. (2010). Correlates of depressive and anxiety symptoms in young adults with spina bifida. Journal of Pediatric Psychology, 35(7), 778-789.
Hoon AH Jr, Stashinko EE, Nagae LM, Lin DD, Keller J, Bastian A, Campbell ML, Levey E, Mori S, Johnston MV. (2009). Sensory and motor deficits in children with cerebral palsy born preterm correlate with diffusion tensor imaging abnormalities in thalamocortical pathways. Developmental Medicine and Child Neurology, 51(9), 697-704.
Lacbawan F, Solomon BD, Roessler E, El-Jaick K, Domené S, Vélez JI, Zhou N, Hadley D, Balog JZ, Long R, Fryer A, Smith W, Omar S, McLean SD, Clarkson K, Lichty A, Clegg NJ, Delgado MR, Levey E, Stashinko E, Potocki L, Vanallen MI, Clayton-Smith J, Donnai D, Bianchi DW, Juliusson PB, Njølstad PR, Brunner HG, Carey JC, Hehr U, Müsebeck J, Wieacker PF, Postra A, Hennekam RC, van den Boogaard MJ, van Haeringen A, Paulussen A, Herbergs J, Schrander-Stumpel CT, Janecke AR, Chitayat D, Hahn J, McDonald-McGinn DM, Zackai EH, Dobyns WB, Muenke M. (2009). Clinical spectrum of SIX3-associated mutations in holoprosencephaly: correlation between genotype, phenotype and function. Journal of Medical Genetics, 46(6), 389-398.
Danielsson AJ, Bartonek A, Levey E, McHale K, Sponseller P, Saraste H. (2008). Associations between orthopaedic findings, ambulation and health-related quality of life in children with myelomeningocele. Journal of Children's Orthopedics, 2(1), 45-54.
Dodson JL, Furth SL, Hsiao CJ, Diener-West M, Levey EB, Wu AW, Gearhart JP. (2008). Health related quality of life in adolescents with abnormal bladder function: an assessment using the Child Health and Illness Profile-Adolescent Edition. The Journal of Urology, 180(4 Supplement), 1846-1841.
Nagae LM, Hoon AH Jr, Stashinko E, Lin D, Zhang W, Levey E, Wakana S, Jiang H, Leite CC, Lucato LT, van Zijl PC, Johnston MV, Mori S. (2007). Diffusion tensor imaging in children with periventricular leukomalacia: variability of injuries to white matter tracts. American Journal of Neuroradiology, 28(7), 1213-1222.
Leet AI, Mesfin A, Pichard C, Launay F, Brintzenhofeszoc K, Levey EB, D Sponseller P. (2006). Fractures in children with cerebral palsy. Journal of Pediatric Orthopedics, 26(5), 624-627.
Hahn JS, Hahn SM, Kammann H, Barkovich AJ, Clegg NJ, Delgado MR, Levey E. Endocrine disorders associated with holoprosencephaly. Journal of Pediatric Endocrinology & Medicine, 18(10), 935-941.
Register BC, Hansel DE, Hutchins GM, Levey EB, Sponseller PD, Leet AI. (2005). Postoperative gastric rupture in children with cerebral palsy. Journal of Pediatric Orthopedics, 25(3), 280-282.