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Resource Finder at Kennedy Krieger Institute
A free resource that provides access to information and support for individuals and families living with developmental disabilities.
Paul Lipkin, M.D.
Kennedy Krieger Institute
707 N. Broadway
Baltimore, MD 21205
Phone: 443-923-3265 or 4140
Dr. Paul Lipkin is the director of Medical Informatics and principal investigator of the Interactive Autism Network (IAN) at the Kennedy Krieger Institute. Dr. Lipkin is also an associate professor of pediatrics at the Johns Hopkins University School of Medicine.
Dr. Lipkin received his undergraduate degree from Rutgers University and attended medical school at the University of Medicine and Dentistry of New Jersey - New Jersey Medical School. He received his general pediatric training, focusing on primary care, at Sinai Hospital of Baltimore, followed by subspecialty training in developmental pediatrics at Johns Hopkins University and the Kennedy Krieger Institute.
Dr. Lipkin joined the faculty of the Kennedy Krieger Institute and Johns Hopkins University in 1995. He served as the director of the Center for Development and Learning in the Department of Neurology and Developmental Medicine from 1998 to 2013. Dr. Lipkin now serves as the director of Medical Informatics at the Kennedy Krieger Institute. He is board-certified in pediatrics, neurodevelopmental disabilities, and developmental and behavioral pediatrics. As director of Medical Informatics, Dr. Lipkin oversees the Interactive Autism Network (IAN) and related clinical and research informatics services, connecting those affected by autism and other developmental disorders with researchers throughout the world. He provides clinical service in the Center for Development and Learning, evaluating and treating children with developmental concerns, including autism, attention, learning, and language disorders. He serves on the faculty of the Institute's Leadership Education in Neurodevelopmental Disabilities (LEND) program, as well as the medical school's pediatrics programs.
As the Principal Investigator of IAN, Dr. Lipkin directs a team of researchers at Kennedy Krieger Institute in a program connecting patients and families with medical researchers throughout the world. IAN is the largest individual- and family-driven online autism community and research platform. With over 45,000 research participants and worldwide engagement, IAN offers innovative resources and services to facilitate strategic partnerships between the autism community and researchers. IAN families participate in projects in genetics, neuroscience, medical treatments, community services, diagnostic issues, behavioral needs, vaccines, and most recently, bullying, wandering, and elopement.
Dr. Lipkin has also had a career focus on the early identification and treatment of neurodevelopmental disorders in infants and children. He is active on initiatives centered on developmental and autism screening in the general population as well as high-risk children, such as those with congenital heart disease and motor disorders. He has served on consensus panels on the neurodevelopmental evaluation of children exposed to alcohol during pregnancy as well as other prenatal and environmental toxins.
Dr. Lipkin has provided national leadership on autism and other developmental disorders through his work with the American Academy of Pediatrics (AAP), who awarded him with the Arnold J. Capute Award in 2011 in recognition of his contributions to the field of developmental disabilities. He is past Chair of the its Council on Children with Disabilities, where he led educational and policy initiatives aimed at improving identification and care of children with developmental and autism spectrum disorders. He continues to lead key AAP initiatives on early developmental surveillance and screening. He was also honored as a Robert Wood Johnson Foundation Health Policy Fellow in 2010-2011, where he gained experience shaping national health and disability policy in the Office of the U.S. Secretary of Health and Human Services.
To request an appointment, please contact the Kennedy Krieger Institute Intake Line, at (888) 554-2080 or TTY (443) 923-2645.
Marino BS, Lipkin PH, Newburger JW, Peacock G, Gerdes M, Gaynor JW, Mussatto KA, Uzark K, Goldberg CS, Johnson WH Jr, Li J, Smith SE, Bellinger DC, Mahle WT; on behalf of the American Heart Association Congenital Heart Defects Committee of the Council on Cardiovascular Disease in the Young, Council on Cardiovascular Nursing, and Stroke Council. (2012). Neurodevelopmental Outcomes in Children With Congenital Heart Disease: Evaluation and Management: A Scientific Statement From the American Heart Association. Circulation. 126:1143-1172.
Noritz GH, Murphy NA; Neuromotor Screening Expert Panel (Lipkin PH, panelist). (2013). Motor delays: early identification and evaluation. Pediatrics. 131:e2016-27.
Lipkin PH, Hyman SL. (2011). Should all children be screened for autism spectrum disorders? Yes: merging science, policy, and practice. American Family Physician, 84(4), 361-367.
Rimrodt SL, Lipkin PH. (2011). Learning disabilities and school failure. Pediatrics in Review, 32(8), 315-324.
King TM, Tandon SD, Macias MM, Healy JA, Duncan PM, Swigonski NL, Skipper SM, Lipkin PH. (2010). Implementing developmental screening and referrals: lessons learned from a national project. Pediatrics, 125(2), 350-360.