Moser Center for Leukodystrophies

New Center’s Innovative Model Provides Comprehensive Care for Patients and Families

Dr. Hugo W. Moser and Augusto Odone

Moser with Augusto
Odone, Lorenzo's oil

For more than 30 years, Kennedy Krieger Institute has been internationally recognized as an authority on the study and care of patients diagnosed with a wide range of leukodystrophies, thanks in large part to the visionary thinking and enduring legacy of the late Dr. Hugo W. Moser. One of the world’s foremost leaders in the field of leukodystrophies, Dr. Moser believed that innovative research and professional training held the key to enhancing clinical care, improving patient outcomes, and improving the lives of individuals with leukodystrophies worldwide.

Today, that commitment continues through the Moser Center for Leukodystrophies at Kennedy Krieger Institute, where leading edge techniques in neuroimaging, genomics, biomedical engineering, and nanotechnology are helping our experts enhance understanding, diagnosis, and treatment.

Following Dr. Moser’s model of collaborative and comprehensive care, the center’s interdisciplinary approach brings together the fields of neurogenetics, genetic counseling, neurorehabilitation, endocrinology, and urology, along with physical, occupational, speech, and aquatic therapy. Our experts also work collaboratively with other leukodystrophy centers across the country and around the world.

Our Mission

Our mission is to improve the care of individuals affected by a leukodystrophy from early childhood to late adulthood.

Our Vision

Our vision is to combine cutting edge techniques in neuroimaging, genomics, biomedical engineering, and nanotechnology to develop new diagnostic tools and novel therapeutics for leukodystrophies. Furthermore, we aspire to provide the best possible comprehensive care to patients with leukodystrophies through an interdisciplinary approach.

WE NEED YOUR INPUT

If you or your loved one has a leukodystrophy, we invite you to take a brief survey. Your input will help us ensure that our new center meets the needs of children and adults with leukodystrophies. Based on the results of this survey and other stakeholder input, we plan to invite interested stakeholders to a roundtable discussion at Kennedy Krieger Institute in the coming year.

If you are a parent or caregiver of a leukodystrophy patient, please click on the following link to take the parent/caregiver survey.

If you are an adult with a leukodystrophy, please click on the following link to take the adult patient survey.

PRIMARY DIAGNOSES SERVED

PATIENT SUPPORT & ADVOCACY

Connect With Us

If you'd like to receive updates on the development of the new center and leukodystrophy research initiatives, please complete this form.