Holoprosencephaly and Related Malformations Center


Elaine Stashinko, PhD, RN
Program Director

Alexander H. Hoon Jr., MD, MPH
Medical Director

Eric Levey, MD
Associate Medical Director

Heather Kammann, BA, LLB
Research Coordinator

About the Center:

The Carter Center for Brain Research in Holoprosencephaly and Related Malformations at the Kennedy Krieger Institute is part of a national multicenter collaboration providing education/family support and clinical care for children with holoprosencephaly, as well as research on this rare disorder. There are three primary goals for this program:

  • Research
  • Education and Family Support
  • Clinical Services

The Carter Center is supported by a grant from the Don and Linda Carter Foundation.

Diagnoses Served: