Research results: preserving newborn blood samples.

TitleResearch results: preserving newborn blood samples.
Publication TypeJournal Article
Year of Publication2012
AuthorsLewis MH, Scheurer ME, Green RC, McGuire AL
JournalScience translational medicine
Volume4
Issue159
Pagination159cm12
Date Published2012 Nov 7
Abstract

Retention and use, without explicit parental permission, of residual dried blood samples from newborn screening has generated public controversy over concerns about violations of family privacy rights and loss of parental autonomy. The public debate about this issue has included little discussion about the destruction of a potentially valuable public resource that can be used for research that may yield improvements in public health. The research community must advocate for policies and infrastructure that promote retention of residual dried blood samples and their use in biomedical research.

DOI10.1002/mus.23848
Alternate JournalSci Transl Med