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  1. Patient & Family Support

    ... The Institute also recognizes that managing medical care for yourself or a loved one can be a huge responsibility. That's why ... for the services and support they need. Patient Bill of Rights Patient Bill of Rights and Responsibilities ...

    Anonymous (not verified) - 2015-10-06 16:51

  2. Completed Research Studies To Improve Clinical Care Of Sturge-Weber Syndrome

    STUDIES TO IMPROVE CLINICAL CARE OF STURGE-WEBER SYNDROME Cannabidiol Treatment f or Refractory ... we propose consideration of this testing method in any patient taking anticonvulsants, most notably oxcarbazepine. A pilot ... Feb; 27(2): 274-7. Division of Neuroradiology, Russell H. Morgan Department of Radiology and Radiological Science, Johns Hopkins ...

    Sowmya Nath, - 2017-06-02 12:09

  3. Recent Publications and Presentations

    ... Following Long-Term Activity-Based Restorative Therapy in a Patient with Chronic Cervical Incomplete Spinal Cord Injury" Regenberg ... Into the Wilderness; Trauma, Hospitalization, and Acute Care . Palmer S, Kriegsman K, Palmer J (ed).  Spinal Cord Injury; A Guide ...

    Justus Burkhardt, - 2017-06-21 11:13

  4. Doctoral Internship Training in Health Service PsychologyDoctoral Internship Training/Behavioral Psychology and Neuropsychology

    ... multi-systems collaboration; integrated behavioral health care. Background: Ph.D., Lehigh University; Doctoral Internship at the Munroe ... managed care outpatient format, evaluation of parental and patient variables which predict treatment outcome, accuracy of parental report. ...

    Anonymous (not verified) - 2017-09-25 17:05

  5. Brain Injury Responsiveness Program

    ... the evaluation, the interdisciplinary treatment team and the patient's family will work together to identify goals for participation in the ... unit or receive intensive outpatient coordinated care. Subsequent evaluations and treatment are carried out by a specialized ...

    Anonymous (not verified) - 2017-06-15 13:49

  6. Center for Genetic Muscle Disorders: Publications and Additional Resources

    ... Publications from the Center (Since 2010): Clinical Care Chagarlamudi H, Corbett A, Stoll M, Bibat G, Grosmann C, Stock CM, ... Left ventricular dysfunction and conduction disturbances in patient with myotonic muscular dystrophy type I and II.  JAMA Cardiol.  2017, ...

    Anonymous (not verified) - 2017-03-02 14:54

  7. Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine

    Director: Alexander H. Hoon Jr., M.D., M.P.H. About the Phelps Center: The Phelps ... team of experts will work together with each patient to provide comprehensive care that is focused on optimizing function, promoting self-esteem, and ...

    Anonymous (not verified) - 2017-07-07 09:56

  8. Recent Publications and Presentations

    ... Following Long-Term Activity-Based Restorative Therapy in a Patient with Chronic Cervical Incomplete Spinal Cord Injury" Regenberg ... Into the Wilderness; Trauma, Hospitalization, and Acute Care . Palmer S, Kriegsman K, Palmer J (ed).  Spinal Cord Injury; A Guide ...

    Anonymous (not verified) - 2016-08-24 16:56

  9. Completed Research Studies To Improve The Diagnosis And Monitoring Of Sturge-Weber Syndrome

    ... control of their seizures and stroke-like episodes. If the patient fails medical management and seizures are regular and accompanied by ... syndrome and may be useful as a biomarker in clinical care and drug trials. Abstract: IMPORTANCE: With the recent ...

    Sowmya Nath, - 2016-08-03 12:54

  10. Foundation Grant Opportunities

    ... See Guidelines Education or Patient Services Grants: $1,000-$5,000 Research Grants: $10,000-$20,000 ... caregivers Members of academic institutions, health care providers and organizations, or consumer advocates and organizations ...

    Katie Willmott, - 2016-11-01 15:40

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