Institute Publications

In My Own Words: Marshall Garber

November 13, 2013
When a spinal cord mass left him paralyzed, Marshall’s life changed forever. It changed again during an adaptive ski trip arranged by Kennedy Krieger.

Marshall Garber

Marshall Garber is a patient at Kennedy Krieger’s International Center for Spinal Cord Injury.

Sturge-Weber Syndrome and Port-Wine Stain Birthmarks: Identifying the Cause, Pursuing the Cure

by Martie
November 13, 2013
Researchers at Kennedy Krieger recently announced the groundbreaking discovery of the genetic mutation that causes Sturge-Weber syndrome and port-wine stain birthmarks.

For patients with Sturge-Weber syndrome, like Madisynn Rodriguez (left), the discovery offers hope for new targeted therapies.After almost fifteen years of study, Anne Comi, MD, director of the Instit

Is It Picky Eating or Something More?

November 13, 2013
Kennedy Krieger’s Pediatric Feeding Disorders Program helps children overcome feeding problems.

Catering to a child who is a picky eater is like being a short-order cook: chaotic. Dinnertime becomes a war zone, leading to hopeless battles fought over vegetables and macaroni and cheese.

The Comeback Kid

by Abigail
November 13, 2013
The Neurobehavioral Unit at Kennedy Krieger helps turn around a young boy with self-injurious and aggressive behavior.

Luke McNair happyChrissy McNair describes her son Luke, 13, as “one of the happiest kids I’ve ever met.” He usually wakes up in a good mood and likes cracking jokes with his two brothers. He loves Top-40 music and animals, and has been riding horses since he was 3 years old. “The best word for him is passionate,” says his mother.

Beating the Pain

by Kristina
November 12, 2013
After multiple doctors could not help relieve her suffering from pain so severe she could no longer walk, Katie Bickford sought help at Kennedy Krieger’s Pediatric Pain Rehabilitation Program and today, she has her life back.

Katie Bickford truckKatie Bickford remembers the pain starting in the 7th grade—it began in her spine and radiated out all over her body. The pain got so bad she couldn’t walk. To make matters worse, she fractured her heel, and then her arm, so it hurt to use crutches.


by Kristina
November 12, 2013
After cancer and chemotherapy left her so fragile doctors said she might never walk again, Perry found her strength with the help of Kennedy Krieger’s Specialized Transition Program.

Perry ZimmermanAt the tender age of 13, Perry Zimmerman has already battled a lifetime’s worth of illnesses. Born with retinoblastoma, a type of eye cancer, Perry developed a related brain tumor at age two that doctors did not expect her to survive.

Letter from Our President - Winter 2013

November 14, 2013

Dr. Gary GoldsteinIt’s often the simplest moments in life that we take for granted—a hug from a child, sitting down with our families for a meal, or sharing laughter with family and friends. Yet for many families of children with severe behavioral or feeding disorders, chronic pain, and other disorders and injuries, these moments are difficult to come by.


November 12, 2013
Special education teacher Katie Cascio is inspired by a student who comes into his own at Kennedy Krieger High School.

DeVant Capers with his teacher, Katie CascioI was lucky enough to meet DeVante—a shy, reserved student with autism spectrum disorder—during my first year as an assistant teacher at

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  • Transition Success Story: Liza Patchel

    August 2, 2013
    A lifetime of care at Kennedy Krieger, along with her mother’s no-pity approach to parenting, helped Liza on her path to earning a master’s degree and living independently.

    Liza PatchelWhen Liza Patchel was diagnosed with cerebral palsy as an infant, doctors said she would never speak or walk. When she enrolled in public school, administrators said she would never play for their sports teams. Other “experts” told her she would never go to college. Now 31, Liza has spent most of her life proving them wrong.

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