Read the latest updates from our Autism Research and Engagement Core and People On the Go Maryland.
Autism Research and Engagement Core
The MCDD Autism Research and Engagement Core team members are consultants to Simons Powering Autism Research (SPARK), a long-term study of autism spectrum disorder. Those members include Cheryl Cohen, MS, director of online and community programs; J. Kiely Law, MD, MPH, research director; Alison R. Marvin, PhD, research manager; Marina Sarris, MA, web content administrator; and Jaimie Toroney, MHS, research manager.
Sarris recently contributed a series of insightful articles to SPARK’s website, each offering valuable perspectives on autism. The first article, “The Whys of Autism: Parents See Mostly Benefits to Learning Their Child’s Autism is Genetic,” posted on July 2. This article delves into the positive impacts and insights parents gain when they understand the genetic aspects of their child’s autism, exploring how this knowledge can be empowering and transformative.
Her next two articles, “Autism and the College Experience” and “How to Find the Right College for Autistic Students,” posted on July 24. The first article discusses the unique challenges and opportunities students with autism face in higher education, while the second provides practical advice for finding a college that meets the specific needs of an autistic individual.
In her article posted on August 8—“What Can Autistic People Learn From Genetic Testing?”—she addresses the potential benefits of genetic testing for people with autism. Lastly, she shares a poignant story in “A Mother’s Push for Answers Leads to Autism Diagnoses,” posted on August 28. This article highlights a mother’s determination to understand her child’s condition, ultimately leading to a crucial autism diagnosis and shedding light on the personal journey of seeking answers.
People On the Go (POG) Maryland
People On the Go Maryland (POG) continues its advocacy efforts by providing training, collaborating with disability-focused organizations and participating in local events. POG team members include Griffin Clabaugh-Bareford, social media coordinator; Cody Drinkwater, public policy assistant; James Orman, program coordinator; Mat Rice, executive director; and Tracy Wright, deputy director and director of training.
The last few months were filled with meaningful engagements for POG team members, as they actively participated in various events to promote disability acceptance and advocacy. On July 20, Wright gave a presentation at the Creating Connections Community Conference, hosted by the CACNA1A Foundation. Her presentation, “The Importance of Advocacy for People with Disabilities,” was well received. On July 22, Orman and Wright delivered training from the Project STIR (Steps Toward Independence and Responsibility) curriculum to staff members of Liberty Health Corporation.
On August 24, Orman hosted an in-person picnic for Autism On the Go, POG’s newest program for adults with autism. The event was a success, thanks to the collaborative efforts of the members of the Autistic Leaders Program (including Kristine Nellenbach, MS, program coordinator for the Resource Finder), who were instrumental in the planning and execution of the event. On August 26, Orman and Wright led a “Train the Trainer” curriculum presentation in collaboration with Liberty Health Corporation. On August 26, Marcus Whitman from The IMAGE Center of Maryland interviewed Orman for an upcoming article about invisible disabilities. On August 29, Orman, Rice and Wright gave a presentation to staff members of Service Coordination, Inc, “Communications With Family and People Being Supported.” The session provided practical tips for fostering better understanding and relationships with both families and individuals receiving support.
On September 7, POG members hosted a summer picnic, which was a fantastic success. Held at the Hake Pavilion of The Arc Central Chesapeake Region, in Severn, Maryland, the event featured a dazzling magic show by Cody Clark, a self-advocate and magician. The talent show, emceed by self-advocate Rosanna Tufts, was a highlight, with lively performances by talented members. It was a wonderful opportunity for everyone to connect and enjoy some fun.
On September 10, members of the POG team exhibited a table at a meet-and-greet Hispanic Outreach Through Positive Engagement (H.O.P.E.) event. Hosted by the Roman Catholic Archdiocese of Washington’s Office of Deaf and Disabilities Ministry and The Arc Prince George’s County, the event was an opportunity for leaders of nonprofit and faith organizations to enhance their outreach efforts to Hispanic community members.
POG members have shared a variety of insightful presentations at recent POG member meetings. On July 24, the monthly member meeting featured a presentation, “Disability, Intersectionality, and Allyship,” which delved into crucial aspects of disability advocacy and support. On August 9, the discussion centered around “Voting and Project 2025,” providing valuable information on voting rights and future initiatives. On August 23, the focus shifted to “Disabilities and Technology,” examining the ways technology impacts and supports individuals with disabilities. Most recently, on September 20, the meeting covered “Meeting Etiquette,” offering practical tips for effective communication and participation. These presentations have contributed greatly to the ongoing learning and engagement of POG members.
POG released the second edition of the POG newsletter in August. This latest edition is packed with updates, resources and stories from the POG community. Be sure to check it out and stay informed on the important work POG members are doing for the disability community.