Kabuki Syndrome: Why Studying Rare Diseases Is So Important to All of Us

Join Dr. Brad Schlaggar, president and CEO of Kennedy Krieger, as he discusses research around rare disease with Dr. Jacqueline Harris, a pediatric neurologist and an international leader in the study of Kabuki syndrome.

Kennedy Krieger is Investigating the Mysteries of Rare Diseases

Kennedy Krieger Institute has long been a leader in understanding and treating complex neurodevelopmental and genetic conditions, serving children and families affected by disorders that most clinical specialists may encounter only once, if ever, in their careers.

Meet Ayden

Diagnosed with a rare terminal disease, Ayden defied expectations thanks to breakthrough treatment and donor support. Today, he’s a joyful Pokémon expert who lights up every room.

Letter From Our President

In this issue, we highlight some of the ways in which we’re making a positive impact on children, teens and adults around the world.

Legacy of Care

Alums of Kennedy Krieger’s professional training programs bring Institute expertise to individuals and families in Baltimore—and beyond.

Career-Changing Training

Kennedy Krieger’s training in neurodevelopmental disabilities is world-renowned. Read how it’s shaped the careers of four alums.

Opportunities That Keep on Giving

Many training alums stay on at Kennedy Krieger as faculty members—or return to the Institute after working elsewhere.

Streaming Science for All

Kennedy Krieger makes information about neurodevelopmental disabilities more accessible with its podcast and webinar series.

Life-Changing Diagnosis

A diagnosis of POTS at Kennedy Krieger helped Hayden get his life back. Now, he’s helping others with the same diagnosis.