The following studies are actively recruiting. 

Recruiting children with sickle cell disease under 5 years of age.

Description: Researchers at the Kennedy Krieger Institute and the Johns Hopkins Hospital are looking for volunteers to participate in a research study on neurodevelopment in young children with sickle cell disease.

To participate in the study, your child must:

  • Be under 5 years of age
  • Have a diagnosis of sickle cell disease
  • Be willing to have a neurodevelopmental evaluation.

This study involves 3 study visits involving:

  • History and neurological examination
  • Neuropsychological testing
  • MRI of the brain
  • Blood sample completed at one of the visits above

After the 3 visits above, this study may require annual visits until age 5, including neurological exam and blood sample collection. At their final visit at age 5, this study will require neurological examination, neuropsychological testing, MRI of the brain, and blood sample collection.  Participations will receive compensation .

Eligibility & Criteria

IRB # : :IRB00096434

Principal Investigator: Eboni Lance, MD, PhD

Eligible Age Range: under age 5

Gender: All

Diagnosis:  Sickle Cell

Contact:  Eboni Lance at 443-248-6714 or email SickleCell@KennedyKrieger.org

View research flyer

Are you interested in a study on hearing loss and dizziness?

Description: Researchers at the Kennedy Krieger Institute and the Johns Hopkins Hospital are looking for volunteers to participate in a research study on hearing loss and dizziness.

To participate in the study, you must:

  • Be between the ages of 18 to 80 years
  • May or may not have a diagnosis of sickle cell disease

This study involves:

  • Short survey
  • Neurological examination
  • Hearing and dizziness testing

Compensation provided.

Eligibility & Criteria

IRB # IRB00222251

Principal Investigator: Eboni Lance, MD, PhD

Eligible Age Range: 18 – 80 years

Gender: All

Diagnosis:  Sickle Cell

Contact:  Eboni Lance at 443-248-6714 or email SickleCell@KennedyKrieger.org

Click here to view study flyer