Resources from the Spinal Cord Injury Program

Spinal Cord Resources

• Autonomic Dysreflexia (AD) Wallet Card
• Blink of an Eye podcast
• Christopher and Dana Reeve Paralysis Resource Center (PRC)
• Determined 2 Heal
• Facing Disability
• HelpHOPELive (Formerly NTAF)
• Paralyzed Veterans of America
• Spinal Cord Injury Resource Center- United Spinal Association
• Spinal Cord Injury Information Network
• Travis Roy Foundation
• United 2 Fight Paralysis
• United Spinal Association

Spinal Tumor Resources

• The Brain Tumor Society

Respiratory Health Resources

• International Ventilator Users Network
• Ventilator Users Support

Fitness & Exercise Resources

• National Center for Physical Activity and Disability

Children's Resources

For children who have a spinal cord injury or who have a family member with this type of injury, explaining the injury to family, friends and even themselves can be a challenge.

Two new booklets created by Kennedy Krieger clinicians in partnership with the Christopher and Dana Reeve Foundation fill in that gap. Janet Dean, a certified pediatric nurse practitioner, and Emily Montag, a certified child life specialist at Kennedy Krieger, created two booklets—one for preschool-age children and the other for school-age children—that provide an overview of the spinal cord, hands-on activities, patient stories and photos. Using age-appropriate language, these easy-to-understand booklets are designed to help children better understand spinal cord injuries and the effects the condition has on an individual.

• See What We Can Do, See Where We Can Go! (preschool children)
• Some Walk, I Roll. Let’s Learn Why (school age children)

Women's Resources

• National Resource Center for Parents with Disabilities
• Prepping to See Your Gynecologist: Guide for a Successful Visit

Rehabilitation Resources

• Academy of Spinal Cord Injury Professionals
• American Congress of Rehabilitation Medicine
• American Academy of Neurology
• American Academy of Physical Medicine and Rehabilitation
• American Occupational Therapy Association
• American Physical Therapy Association

Research Resources

• CenterWatch
• Clinical Trials

Gullian-Barre Syndrome Resources

• GBS-CIDP Foundation International

Multiple Sclerosis Resources

• National Institute of Neurological Disorders and Stroke
• National Multiple Sclerosis Society

Transverse Myelitis Resources

• The Cody Unser First Step Foundation
• Siegel Rare Neuroimmune Association (SRNA)

Acute Flaccid Myelitis Resources

• What You Should Know About Acute Flaccid Myelitis
• Acute Flaccid Myelitis Virtual Symposium: What We Have Learned In Order to Be Prepared

Caregiver Resources

• Caregiving.com
• National Alliance for Caregiving
• Caregivers Action Network (CAN)
• Well Spouse