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Batten Disease Studies

this section

Participate in Research

  • ADHD Studies
    Show more
    • Adolescent Changes in Brain and Behavior in Boys and Girls with ADHD
    • Executive Functions in Reading
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
    • Understanding Motor Movement in Children With and Without ADHD
  • Autism Studies
    Show more
    • Application and Validation of the RITA-T (Rapid Interactive screening Test for Autism in Toddlers) in Children 3-5 years Old
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • Developing New Diagnostic Tools for Autism
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • Online Research Opportunity ages 12 – 36 months
    • Social Communication Intervention for Toddlers with Autism Spectrum Disorder
  • Batten Disease Studies
    Show more
    • Kennedy Krieger Institute Research Video Repository
    • Neuronal Ceroid Lipofuscinoses Natural History Study
  • Bipolar Studies
    Show more
    • The Balance Study
  • Caregiver Studies
    Show more
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • To explore how individual members of the family are affected by caregiver burden when providing care for a child with special needs.
  • Cerebral Palsy Studies
    Show more
    • Noninvasive Research Study to Explore Chronic Pain in Individuals With Cerebral Palsy
    • Research Opportunity for Children and Adults with Cerebral Palsy and/or Caregivers
    • Valbenazine for the Treatment of Dyskinesia Due to Cerebral Palsy (Neurocrine)
  • Clinical Trials
    Show more
    • A Randomized Study of BPN14770 in Male Adolescents (Aged 12 to < 18 Years) With Fragile X Syndrome
    • Assessment of Potential for Chronic Liver Injury in Participants Treated With Epidiolex (Cannabidiol) Oral Solution
    • The Balance Study
    • Does Your Child Have Epilepsy
    • Epidiolex® For the Treatment Of Anxiety Comorbidity In Refractory Pediatric Epilepsy (EAPE)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • LIFE-DSR
    • Perinatal Arterial Stroke: A Multi-site RCT of Intensive Infant Rehabilitation (I-ACQUIRE)
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Guanfacine for Hyperactivity in Children with Down Syndrome (HYP01; HYPEbeGONE_DS)
    • Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
  • Cornelia de Lange
    Show more
    • Cornelia de Lange Behavior Study
  • Down Syndrome Studies
    Show more
    • Guanfacine for Hyperactivity in Children with Down Syndrome
  • Epilepsy Studies
    Show more
    • Does Your Child Have Epilepsy?
  • Fragile X Syndrome Studies
    Show more
    • A Randomized, Double-Blind, Placebo-Controlled Study in Male Adolescents with Fragile X Syndrome (TETRA 204)
    • A Randomized, Double-Blind, Placebo-Controlled Study in Male Adults with Fragile X Syndrome (TETRA 301)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • ZYN002 Administered as a Transdermal Gel to Children, Adolescents, and Young Adults for Treatment of Fragile X Syndrome
  • Learning Disorders Studies
    Show more
    • Computerized Reading Intervention Research Study
  • Leukodystrophies Studies
    Show more
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Have you been diagnosed with Cerebral X-linked Adrenoleukodystrophy (cALD)
  • Muscular Dystrophy Studies
    Show more
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
  • Osteogenesis Imperfecta Studies
    Show more
    • A Phase 1b, Single Ascending Dose, Randomized, Double-Blind Study to Evaluate SAR439459 for the Treatment of Osteogenesis Imperfecta in Adults
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
  • Pregnancy and Infancy Studies
    Show more
    • The HEALthy Brain and Child Development (HBCD) Study
  • Research Studies and Trials by Diagnosis
  • SCIPS Research Study
    Show more
    • Join SCIPS
  • Schizophrenia Studies
    Show more
    • Are You/Your Child Still Struggling with Schizophrenia?
  • Sickle Cell Disease Studies
    Show more
    • Recruiting children with sickle cell disease under 5 years of age.
    • Sickle Cell Research Study
    • Are you interested in a study on hearing loss and dizziness?
  • Social Communication Studies
    Show more
    • Online Research Opportunity ages 12 – 36 months
  • Spark for Autism
    Show more
    • Who Can Join SPARK?
    • Meet The Team
    • SPARK Webinars and Articles
    • CASSI Presentations
  • Spinal Cord Injury Studies
    Show more
    • Adults with spinal cord injury needed to participate in a 4-week cycling program
  • Stomach Studies
    Show more
    • What is your stomach saying to your brain?
  • Typically Developing Children
    Show more
    • Computerized Reading Intervention Research Study
    • Developing New Diagnostic Tools for Autism Adults
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • Online Research Opportunity ages 12 – 36 months
    • Research Opportunity for Healthy Children or Adults
    • Research Volunteers Needed
    • Typically Developing Participants – Ages 6 - 17

Currently Recruiting Studies

Kennedy Krieger Institute Research Video Repository

Kennedy Krieger Institute Research Video Repository

The Neuronal Ceroid Lipofuscinoses Natural History Study

The Neuronal Ceroid Lipofuscinoses Natural History Study

this section

Participate in Research

  • ADHD Studies
    Show more
    • Adolescent Changes in Brain and Behavior in Boys and Girls with ADHD
    • Executive Functions in Reading
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
    • Understanding Motor Movement in Children With and Without ADHD
  • Autism Studies
    Show more
    • Application and Validation of the RITA-T (Rapid Interactive screening Test for Autism in Toddlers) in Children 3-5 years Old
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • Developing New Diagnostic Tools for Autism
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • Online Research Opportunity ages 12 – 36 months
    • Social Communication Intervention for Toddlers with Autism Spectrum Disorder
  • Batten Disease Studies
    Show more
    • Kennedy Krieger Institute Research Video Repository
    • Neuronal Ceroid Lipofuscinoses Natural History Study
  • Bipolar Studies
    Show more
    • The Balance Study
  • Caregiver Studies
    Show more
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • To explore how individual members of the family are affected by caregiver burden when providing care for a child with special needs.
  • Cerebral Palsy Studies
    Show more
    • Noninvasive Research Study to Explore Chronic Pain in Individuals With Cerebral Palsy
    • Research Opportunity for Children and Adults with Cerebral Palsy and/or Caregivers
    • Valbenazine for the Treatment of Dyskinesia Due to Cerebral Palsy (Neurocrine)
  • Clinical Trials
    Show more
    • A Randomized Study of BPN14770 in Male Adolescents (Aged 12 to < 18 Years) With Fragile X Syndrome
    • Assessment of Potential for Chronic Liver Injury in Participants Treated With Epidiolex (Cannabidiol) Oral Solution
    • The Balance Study
    • Does Your Child Have Epilepsy
    • Epidiolex® For the Treatment Of Anxiety Comorbidity In Refractory Pediatric Epilepsy (EAPE)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • LIFE-DSR
    • Perinatal Arterial Stroke: A Multi-site RCT of Intensive Infant Rehabilitation (I-ACQUIRE)
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Guanfacine for Hyperactivity in Children with Down Syndrome (HYP01; HYPEbeGONE_DS)
    • Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
  • Cornelia de Lange
    Show more
    • Cornelia de Lange Behavior Study
  • Down Syndrome Studies
    Show more
    • Guanfacine for Hyperactivity in Children with Down Syndrome
  • Epilepsy Studies
    Show more
    • Does Your Child Have Epilepsy?
  • Fragile X Syndrome Studies
    Show more
    • A Randomized, Double-Blind, Placebo-Controlled Study in Male Adolescents with Fragile X Syndrome (TETRA 204)
    • A Randomized, Double-Blind, Placebo-Controlled Study in Male Adults with Fragile X Syndrome (TETRA 301)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • ZYN002 Administered as a Transdermal Gel to Children, Adolescents, and Young Adults for Treatment of Fragile X Syndrome
  • Learning Disorders Studies
    Show more
    • Computerized Reading Intervention Research Study
  • Leukodystrophies Studies
    Show more
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Have you been diagnosed with Cerebral X-linked Adrenoleukodystrophy (cALD)
  • Muscular Dystrophy Studies
    Show more
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
  • Osteogenesis Imperfecta Studies
    Show more
    • A Phase 1b, Single Ascending Dose, Randomized, Double-Blind Study to Evaluate SAR439459 for the Treatment of Osteogenesis Imperfecta in Adults
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
  • Pregnancy and Infancy Studies
    Show more
    • The HEALthy Brain and Child Development (HBCD) Study
  • Research Studies and Trials by Diagnosis
  • SCIPS Research Study
    Show more
    • Join SCIPS
  • Schizophrenia Studies
    Show more
    • Are You/Your Child Still Struggling with Schizophrenia?
  • Sickle Cell Disease Studies
    Show more
    • Recruiting children with sickle cell disease under 5 years of age.
    • Sickle Cell Research Study
    • Are you interested in a study on hearing loss and dizziness?
  • Social Communication Studies
    Show more
    • Online Research Opportunity ages 12 – 36 months
  • Spark for Autism
    Show more
    • Who Can Join SPARK?
    • Meet The Team
    • SPARK Webinars and Articles
    • CASSI Presentations
  • Spinal Cord Injury Studies
    Show more
    • Adults with spinal cord injury needed to participate in a 4-week cycling program
  • Stomach Studies
    Show more
    • What is your stomach saying to your brain?
  • Typically Developing Children
    Show more
    • Computerized Reading Intervention Research Study
    • Developing New Diagnostic Tools for Autism Adults
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • Online Research Opportunity ages 12 – 36 months
    • Research Opportunity for Healthy Children or Adults
    • Research Volunteers Needed
    • Typically Developing Participants – Ages 6 - 17
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