This study is currently recruiting.
Description: FORWARD-MARCH is the next step following a highly successful research study called FORWARD (Fragile X Online Registry With Accessible Research Database) that was started in 2012. The FORWARD study created the largest database of information on fragile X syndrome (FXS) in the United States. Data from the FORWARD study is being used by researchers to learn about the lives of people with FXS, including medication use, behaviors, and development over time, and share findings with other researchers and clinicians.
Eligibility & Criteria
IRB #: 00337864
Principal Investigator: Dejan B. Budimirovic, MD
Eligible Age Range: Individuals born between 2003-2017
Gender: All
Diagnosis: Fragile X Syndrome