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Muscular Dystrophy Studies

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Kennedy Krieger Institute Research Participate in Research Muscular Dystrophy Studies
this section

Participate in Research

  • ADHD Studies
    Show more
    • Adolescent Changes in Brain and Behavior in Boys and Girls with ADHD
    • Executive Functions in Reading
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
    • Understanding Motor Movement in Children With and Without ADHD
  • Autism Studies
    Show more
    • Application and Validation of the RITA-T (Rapid Interactive screening Test for Autism in Toddlers) in Children 3-5 years Old
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • Developing New Diagnostic Tools for Autism
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • Online Research Opportunity ages 12 – 36 months
    • Social Communication Intervention for Toddlers with Autism Spectrum Disorder
  • Bipolar Studies
    Show more
    • The Balance Study
  • Caregiver Studies
    Show more
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • To explore how individual members of the family are affected by caregiver burden when providing care for a child with special needs.
  • Cerebral Palsy Studies
    Show more
    • Research Opportunity for Children and Adults with Cerebral Palsy and/or Caregivers
    • Valbenazine for the Treatment of Dyskinesia Due to Cerebral Palsy (Neurocrine)
  • Clinical Trials
    Show more
    • A Randomized Study of BPN14770 in Male Adolescents (Aged 12 to < 18 Years) With Fragile X Syndrome
    • Assessment of Potential for Chronic Liver Injury in Participants Treated With Epidiolex (Cannabidiol) Oral Solution
    • The Balance Study
    • Does Your Child Have Epilepsy
    • Epidiolex® For the Treatment Of Anxiety Comorbidity In Refractory Pediatric Epilepsy (EAPE)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • LIFE-DSR
    • Perinatal Arterial Stroke: A Multi-site RCT of Intensive Infant Rehabilitation (I-ACQUIRE)
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Guanfacine for Hyperactivity in Children with Down Syndrome (HYP01; HYPEbeGONE_DS)
    • Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
  • Cornelia de Lange
    Show more
    • Cornelia de Lange Behavior Study
  • Down Syndrome Studies
    Show more
    • Guanfacine for Hyperactivity in Children with Down Syndrome
  • Epilepsy Studies
    Show more
    • Does Your Child Have Epilepsy?
  • Fragile X Syndrome Studies
    Show more
    • A Randomized, Double-Blind, Placebo-Controlled Study in Male Adolescents with Fragile X Syndrome (TETRA 204)
    • A Randomized, Double-Blind, Placebo-Controlled Study in Male Adults with Fragile X Syndrome (TETRA 301)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • ZYN002 Administered as a Transdermal Gel to Children, Adolescents, and Young Adults for Treatment of Fragile X Syndrome
  • Learning Disorders Studies
    Show more
    • Computerized Reading Intervention Research Study
  • Leukodystrophies Studies
    Show more
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Have you been diagnosed with Cerebral X-linked Adrenoleukodystrophy (cALD)
  • Muscular Dystrophy Studies
    Show more
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
  • Osteogenesis Imperfecta Studies
    Show more
    • A Phase 1b, Single Ascending Dose, Randomized, Double-Blind Study to Evaluate SAR439459 for the Treatment of Osteogenesis Imperfecta in Adults
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
  • Pregnancy and Infancy Studies
    Show more
    • The HEALthy Brain and Child Development (HBCD) Study
  • Schizophrenia Studies
    Show more
    • Are You/Your Child Still Struggling with Schizophrenia?
  • Sickle Cell Disease Studies
    Show more
    • Recruiting children with sickle cell disease under 5 years of age.
    • Sickle Cell Research Study
    • Are you interested in a study on hearing loss and dizziness?
  • Social Communication Studies
    Show more
    • Online Research Opportunity ages 12 – 36 months
  • Spark for Autism
    Show more
    • Who Can Join SPARK?
    • Meet The Team
    • SPARK Webinars and Articles
    • CASSI Presentations
  • Spinal Cord Injury Studies
    Show more
    • Adults with spinal cord injury needed to participate in a 4-week cycling program
  • Stomach Studies
    Show more
    • What is your stomach saying to your brain?
  • Typically Developing Children
    Show more
    • Computerized Reading Intervention Research Study
    • Developing New Diagnostic Tools for Autism Adults
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • Online Research Opportunity ages 12 – 36 months
    • Research Opportunity for Healthy Children or Adults
    • Research Volunteers Needed
    • Typically Developing Participants – Ages 6 - 17

Currently Recruiting Studies

""

A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)

this section

Participate in Research

  • ADHD Studies
    Show more
    • Adolescent Changes in Brain and Behavior in Boys and Girls with ADHD
    • Executive Functions in Reading
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
    • Understanding Motor Movement in Children With and Without ADHD
  • Autism Studies
    Show more
    • Application and Validation of the RITA-T (Rapid Interactive screening Test for Autism in Toddlers) in Children 3-5 years Old
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • Developing New Diagnostic Tools for Autism
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • Online Research Opportunity ages 12 – 36 months
    • Social Communication Intervention for Toddlers with Autism Spectrum Disorder
  • Bipolar Studies
    Show more
    • The Balance Study
  • Caregiver Studies
    Show more
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • To explore how individual members of the family are affected by caregiver burden when providing care for a child with special needs.
  • Cerebral Palsy Studies
    Show more
    • Research Opportunity for Children and Adults with Cerebral Palsy and/or Caregivers
    • Valbenazine for the Treatment of Dyskinesia Due to Cerebral Palsy (Neurocrine)
  • Clinical Trials
    Show more
    • A Randomized Study of BPN14770 in Male Adolescents (Aged 12 to < 18 Years) With Fragile X Syndrome
    • Assessment of Potential for Chronic Liver Injury in Participants Treated With Epidiolex (Cannabidiol) Oral Solution
    • The Balance Study
    • Does Your Child Have Epilepsy
    • Epidiolex® For the Treatment Of Anxiety Comorbidity In Refractory Pediatric Epilepsy (EAPE)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • LIFE-DSR
    • Perinatal Arterial Stroke: A Multi-site RCT of Intensive Infant Rehabilitation (I-ACQUIRE)
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Guanfacine for Hyperactivity in Children with Down Syndrome (HYP01; HYPEbeGONE_DS)
    • Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
  • Cornelia de Lange
    Show more
    • Cornelia de Lange Behavior Study
  • Down Syndrome Studies
    Show more
    • Guanfacine for Hyperactivity in Children with Down Syndrome
  • Epilepsy Studies
    Show more
    • Does Your Child Have Epilepsy?
  • Fragile X Syndrome Studies
    Show more
    • A Randomized, Double-Blind, Placebo-Controlled Study in Male Adolescents with Fragile X Syndrome (TETRA 204)
    • A Randomized, Double-Blind, Placebo-Controlled Study in Male Adults with Fragile X Syndrome (TETRA 301)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • ZYN002 Administered as a Transdermal Gel to Children, Adolescents, and Young Adults for Treatment of Fragile X Syndrome
  • Learning Disorders Studies
    Show more
    • Computerized Reading Intervention Research Study
  • Leukodystrophies Studies
    Show more
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Have you been diagnosed with Cerebral X-linked Adrenoleukodystrophy (cALD)
  • Muscular Dystrophy Studies
    Show more
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
  • Osteogenesis Imperfecta Studies
    Show more
    • A Phase 1b, Single Ascending Dose, Randomized, Double-Blind Study to Evaluate SAR439459 for the Treatment of Osteogenesis Imperfecta in Adults
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
  • Pregnancy and Infancy Studies
    Show more
    • The HEALthy Brain and Child Development (HBCD) Study
  • Schizophrenia Studies
    Show more
    • Are You/Your Child Still Struggling with Schizophrenia?
  • Sickle Cell Disease Studies
    Show more
    • Recruiting children with sickle cell disease under 5 years of age.
    • Sickle Cell Research Study
    • Are you interested in a study on hearing loss and dizziness?
  • Social Communication Studies
    Show more
    • Online Research Opportunity ages 12 – 36 months
  • Spark for Autism
    Show more
    • Who Can Join SPARK?
    • Meet The Team
    • SPARK Webinars and Articles
    • CASSI Presentations
  • Spinal Cord Injury Studies
    Show more
    • Adults with spinal cord injury needed to participate in a 4-week cycling program
  • Stomach Studies
    Show more
    • What is your stomach saying to your brain?
  • Typically Developing Children
    Show more
    • Computerized Reading Intervention Research Study
    • Developing New Diagnostic Tools for Autism Adults
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • Online Research Opportunity ages 12 – 36 months
    • Research Opportunity for Healthy Children or Adults
    • Research Volunteers Needed
    • Typically Developing Participants – Ages 6 - 17
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